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Home » Laryngomalacia » So now we call him Squeaker…Part 2.

So now we call him Squeaker…Part 2.

Mar 7, 2012 · Modified: Mar 18, 2014 by Kelly Roenicke · 8 Comments

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Read Part 1 HERE.

After the ordeal of putting in an IV, Baby Bee slept peacefully on my mom and me until it was time for the procedure. I had to pump once during that time, and then I wound up tossing the milk, which seemed like a huge waste.

The nurse came down and said that they were ready for the procedure and that Darryl and I could bring Baby Bee down to the room. Once we got there, they tucked him onto the operating bed with blankets and started checking his vitals and then the anesthesiologist talked to us about what would happen when he injected the medicine. Our doctor arrived and talked about the procedure and let us know that we would be able to stay until Baby Bee fell asleep. Once everything was ready, the sedative was injected, and Baby Bee turned beet red and started waving his arms around. The doctor had said that the medicine burned going in, so that was sad. I held his little hand until he fell asleep, and then we went out to wait until the scope was done.

After a short while, the doctor came out to talk to us, and said that the diagnosis was indeed laryngomalacia and that it was “impressive” as he put it. He showed us the photos from the bronchoscopy, and it turns out that when Baby Bee breathes in, the parts of the larynx that are floppy fold over and cover his airway. I would say that he has about ⅙ of his airway open to breathe through. It’s pretty scary for me to think about his airway being that obstructed right now, but at the same time, it’s miraculous that he is able to breathe and eat as well as he is! The doctor said that we don’t need to consider surgery at this time since he is doing so well, and that the main thing is that he doesn’t get sick. It would be disastrous if he were to get an upper respiratory infection, and we would probably be back in the hospital if that happened.

Laryngomalacia should resolve by 18-24 months, possibly earlier or later, depending on the case.

After our talk with the doctor, we headed to the recovery room to see how he was doing. He was on oxygen, because his pulse ox was dipping from being sedated, and he was very crabby. The nurses suggested I get in the bed and hold him, and right away he calmed down. After awhile, I tried to nurse him, and at first he was fussy and wouldn’t do it, but eventually he did, and then they took him off the oxygen as well. His pulse ox was dropping a little bit still, so whenever that happened, we had to give him a break from nursing to catch his breath. We had one more night in the hospital to monitor his recovery, and the next day we were sent home.

Here are the things that are awesome and not so awesome since the diagnosis:

Awesome:

:: Baby Bee nurses like a champ. The only time he coughs is when my letdown is too forceful. Even then he just pops off and catches his breath and then continues.

:: He is gaining weight very well, he’s now eleven pounds!

:: Since I’ve stopped eating dairy, spitting up has improved, which is great. The acid and spit up can irritate the larynx, causing more swelling and more noisy breathing.

:: I’ve figured out what positions are best for Baby Bee to sleep and eat in. I keep praying for wisdom to know my baby, and know what is best for him.

:: Everyday he is getting bigger and stronger, and that will lead to the floppy tissue resolving.

Not so awesome:

:: It is scary to hear the sounds that he makes and to know that his airway is obstructed.

:: The sounds keep changing as he gets bigger, so it’s hard to know what’s normal.  We’ve gone from a little bird, to a squeaky toy, to a loud, honking goose.

:: His chest retracts when he gets really loud, which is hard to watch.

:: I am very worried about germs right now.  My husband works at a hospital, so I worry about him bringing germs home.  We aren’t going out at all right now, so I can protect Baby Bee somewhat from all the yucky stuff going around.

Taking care of a newborn is intense as it is, and this little condition definitely adds to that.  I am constantly praying that God will watch over Baby Bee when I cannot…it’s the only way that I can get any sleep at night.

Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.  Phil. 4:6-7


 

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Filed Under: Laryngomalacia

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Kelly Roenicke
Kelly Roenicke
Mom to two boys with food allergies and sensitivities, Kelly is passionate about allergy friendly cooking and baking. She believes that you can enjoy amazing, easy recipes even when cooking for multiple food allergies.
Kelly Roenicke
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Reader Interactions

Comments

  1. BJ

    March 08, 2012 at 9:33 pm

    Aw, so sweet. I awfully sorry that he’s having trouble. I will pray for healing and health for him, and for a peace beyond understanding for his momma. Blessings.

    Reply
  2. Meeling

    March 07, 2012 at 10:26 pm

    Big hugs and prayers Kelly!! I somehow missed Part 1 the other day. Scary for sure!! I’ve been through surgeries with mine, but never quite that little. :-( He sounds like he’s a trooper though and glad to hear that he’s back to nursing so well. :-)

    Reply
  3. Jessica

    March 07, 2012 at 12:10 pm

    I will be praying for little bee!

    Reply
  4. Toaster4JC

    March 07, 2012 at 11:58 am

    Praying for your family!

    Reply
  5. "H" is for Heather

    March 07, 2012 at 10:56 am

    Hugs Kelly! Prayers that it will get better even faster than expected. <3

    Reply

Trackbacks

  1. Laryngomalacia and Food Allergy Update. - The Pretty Bee says:
    April 8, 2015 at 8:31 am

    […] Good Morning! Since Baby Bee just turned three, I thought I would do a little update on his health and food allergies. A lot of you may not know that he was born with something called laryngomalacia, which is basically a floppy larynx, and a pretty common birth defect of the airway. It was very scary when he was an infant, because his breathing was incredibly noisy, and his chest would retract (suck in when he took a breath). I shared the whole story here and here. […]

    Reply
  2. Laryngomalacia at Sixteen Months Old. - The Pretty Bee says:
    February 10, 2014 at 4:12 pm

    […] I thought maybe it was time for a little update about Baby Bee’s floppy larynx.  You might remember that he was diagnosed with moderate laryngomalacia (a birth defect of the […]

    Reply
  3. Pepperoni Pizza - Gluten Free, Dairy Free and Egg Free. - The Pretty Bee says:
    October 1, 2013 at 9:53 am

    […] Baby Bee was about one month old, and at the height of his crazy loud breathing due to his floppy larynx, I was so stressed out and worried. I had cut out gluten and dairy among other things, and I […]

    Reply

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